7.26.2011

Americans with Disabilities Act anniversary

Because I suspect many of you aren't reading press releases at mainstream media outlets, here's a press release that went out today.  Commentary for Baxter Sez readers below. 

The Americans with Disabilities Act: A Civil Rights Landmark for People with Disabilities, Including Down Syndrome

A Council on Contemporary Families Discussion Briefing in Honor of the 21st Anniversary of the ADA
July 26, 2011 

Prepared for the Council on Contemporary Families by Alison Piepmeier, Director, Women’s and Gender Studies at the College of Charleston, and Amber Cantrell, Women’s and Gender Studies undergraduate at the College of Charleston

The Americans with Disabilities Act, passed July 26, 1990, is one of the most significant pieces of civil rights legislation in American history. What the Civil Rights Act of 1964 did for people of color, the Americans with Disabilities Act did for people with disabilities -- a population of between 36 and 54 million Americans, representing 12 to 19 percent of the U.S. population. 

New Rights, New Opportunities, and Continued Challenges After ADA

Before the ADA, people with disabilities had no guaranteed access to public spaces, from courthouses and voting booths to retail stores and schools. There was no requirement that public transportation or gas stations be accessible. Now such accessibility is legally mandated. The ADA also prohibits discrimination in employment, health care, and education. Individuals with physical handicaps have entirely new possibilities to pursue educational and work training and to participate in civic life.

As more students with various developmental delays and disabilities are given the opportunity to go to school with their peers and be taught according to their own Individualized Education Plan (IEP – a free resource for school-aged children entering the public school system), old limitations are also slowly being replaced by new expectations for children with intellectual disabilities. In the U.S. there are currently at least 69 four-year college programs designed to include people with intellectual disabilities, not to mention many additional options for postsecondary education.

But misunderstandings about people with disabilities persist, and the question of how to integrate all people with various disabilities—physical, cognitive, and developmental— into American life has not been fully resolved. For example almost twice as many disabled Americans aged 16 and older (21 percent) live below the poverty level as people without disabilities (11 percent). 

Pre-natal Testing Offers Hope and Concern

Even as the ADA has affirmed disability as one aspect of human diversity that should be respected and protected, technological advancements in prenatal testing have raised the possibility of fewer people with disabilities being born. While many people welcome the chance for parents to screen for severe disabilities, others worry that we may be raising the bar for what is considered an “acceptable” child.

Recent reports from two drug companies indicate that by spring 2012, a prenatal test will be available in the U.S. market which will diagnose fetal genetics through a maternal blood sample. This test will cause no risk of miscarriage and can be performed early in a pregnancy. The test is being marketed specifically for diagnosing Down syndrome. The implication is that parents can find out early and easily if their fetus has Down syndrome so that they can terminate the pregnancy, as do 90 percent of families who currently find out through diagnostic testing that their fetus has Down syndrome. Disability rights advocates and many parents of children with Down syndrome worry that such decisions will be based on false stereotypes about the difficulties of raising a Down syndrome child.

For example, although rumors abound about the difficulty of parenting a child with a disability, recent research paints a more optimistic picture. When a study compared the rate of divorce between three groups -- parents with non-disabled children, parents with children who have disabilities not including Down syndrome, and parents with children with Down syndrome -- the rates of divorce were 10.8 percent, 11.2 percent, and 7.6 percent, respectively. Parents who had children with disabilities were only slightly less likely to get divorced, and parents who had children with Down syndrome were actually LESS likely to get divorced. Several studies, including long-term projects involving qualitative interviews with families that include children with disabilities, have failed to find significant differences in reported happiness or trauma for parents of children with disabilities or without.

Less than 30 years ago children born with intellectual disabilities were not expected to walk, talk, or feed themselves. Thanks in part to landmark legislation like the Americans with Disabilities Act, children today born with intellectual or physical disabilities are quickly achieving more than previous generations thought possible. We may have a ways to go, but today our society is much more accepting of difference and more supportive of accommodating a population that for centuries was devalued and maltreated than it was before the ADA was passed.

For more information, please contact Alison Piepmeier, Director, Women’s and Gender Studies at the College of Charleston, 843-953-2280; piepmeiera@cofc.edu.

See also the ADA National Network (http://adata.org/Static/Home.aspx). 

About CCF: The Council on Contemporary Families is a non-profit, non-partisan organization of family researchers, mental health and social practitioners, and clinicians dedicated to providing the press and public with the latest research and best practice findings about American families. Founded in 1996 and based at the University of Illinois at Chicago, the Council's mission is to enhance the national understanding of how and why contemporary families are changing, what needs and challenges they face, and how these needs can best be met. For more information, or to receive future fact sheets and briefing papers from the Council, contact Stephanie Coontz, Director of Research and Public Education of CCF and Professor of History and Family Studies at The Evergreen State College. coontzs@msn.com; 360 352-8117.


Commentary for Baxter Sez readers:
This was an interesting experiment!  The "discussion briefing" is a new genre for me, so Amber and I weren't sure exactly how to do it, and Stephanie Coontz (you know, Stephanie Coontz--as in THE Stephanie Coontz) was incredibly helpful with suggestions, edits, and reorganization ideas.

After the release had already been released, Biffle offered some good feedback.  For instance, he noted that the ADA has worked about as well as the Civil Rights Act:  it demonstrated our society's intentions not to be a bunch of discriminatory jerkwads, but it didn't actually undo all the discriminatory jerkwadishness.  Some of it, yes, but our societal racism, sexism, and discrimination against people with disabilities are entrenched.

And one very tiny point:  I am so fully committed to people first language that it bummed me out to see the phrase "a Down syndrome child," which I'd changed to "a child with Down syndrome."  It makes the back of my neck itchy when people refer to individuals with Down syndrome as "Downs kids" or whatever, so I'm sorry to see it end up in my discussion briefing.  But it's only a small bummer.  On the whole I'm excited to see what happens!

5 comments:

Jims said...

RE: Biffle's comments on the ADA--I think his comment is in line with how law and society scholars study legal rights. Policies like the Civil Rights Act and the ADA rarely have direct impact (i.e., actually initiating quick, widespread change) but they do have a good bit of indirect impact, meaning that they suggest a broader range of valuable citizenship and also code some behavior as inappropriate. Folks interested in the impact of the ADA should check out Engel and Munger's book Rights of Inclusion.

Tara said...

First, as a faithful reader, it offends me that you would think we don't habitually read press releases at mainstream media outlets. :)

Great job! Although, I do wish Biffle's comments could've been included..."jerkwadishness" is classic!

krlr said...

That was beautifully written. I really should look into the history of this more - I'm under the impression that the turning point for kids w/special needs came with Sctn 504 of the Rehab. Act of 1973 - ensuring our kids' access to public schools & eventually those precious IEPs. Following Jim's (Jims'?) and Biffle's comments I wonder if that one piece DID mandate widespread fundamental change (if not 'swift')--our kids were now, officially "teachable", in school just like every other kid, and no longer "needed to be" institutionalized.

Alison said...

Krlr--you're right to note the deliberate fuzziness in our language around IEPs and schooling. Those weren't the result of the ADA--they were, as you note, initiated in 1973 (or 1975?) and then updated as the Individuals with Disabilities in Education Act (IDEA--so good with the acronyms!) in 1990. Not a direct result of the ADA, but bolstered by it.

starrlife said...

What can I add but wow- what a great piece there Alison! It's an honor... truly. You put it out there as clear as a bell! And Biffle too- right on man!